Did you know, 10% of all people diagnosed with Parkinson’s disease are 50 years or younger? Apart from the physical challenges, people with early onset Parkinson’s face issues related to family, career, finances and living long-term with a disabling condition. These unique challenges stem from a desire to continue working, studying, travelling and caring for their family within the framework of their disability. It is crucial that they receive the support they need to remain active at home, at their workplace and within the community.
We work with younger people with Parkinson’s, supporting them to gain and maintain employment and, more recently, to walk alongside providing support and guidance as they access the NDIS. NDIS supports are available to eligible people under 65.
This is the story of John* who lives with early onset Parkinson’s and his NDIS journey.
CHESS NDIS worker Jane* started working with John after meeting him at the Coffs Harbour Early onset Parkinson’s support group. Jane had been invited to attend to provide information on the scheme and to offer support for those who may be eligible to access NDIS funding. Although those in attendance had been living with permanent disability, many had limited knowledge of the scheme and received little or no funding to support their condition.
Jane met with John and assisted him in contacting the NDIS and gathering the required medical evidence to support his application. On review John was deemed eligible and asked that Jane support him through the planning process, working out his goals and the supports he would require.
John’s goals were to sustain his independent living, be supported in organising the household and maintaining the yard and to be able to access therapeutic supports. John also asked for plan management funding to be provided to allow for support in managing his funding and facilitating payments to the providers he would engage.
Living Well with Parkinson’s
John now has access to Allied Health professionals who assist in maintaining his mobility, health and well-being and some home modifications to enable better access around his home. He also has support around the home and yard and assistance in managing his funding and access to supports.
John now looks forward to a life where he can focus on his wellbeing and be supported in living his life free from previous financial constraints.
*real names not used to protect privacy
Do you want to know more about our NDIS services?
Families, carers and people with disability are invited to contact us on 1800 899 017 or email Darren on our NDIS Intake Team on email@example.com